Singer Jesy Nelson says the roll-out of newborn screening for spinal muscular atrophy (SMA) is “a postcode lottery” and “isn’t fair.” The comments come after Nelson campaigned for babies to be screened following her twins’ diagnosis with the rare condition. Across the reporting, Nelson is described as supporting broader access to SMA testing so that newborns across different regions receive the same opportunity for early identification and treatment.
Both outlets frame her intervention as part of an ongoing public push for more consistent screening coverage. The reports describe the core issue as unequal access depending on where a family lives, which Nelson argues can delay diagnosis and care for some babies. The coverage also connects her stance to her personal experience: her twins, Ocean Jade and Story Monroe Nelson, were diagnosed with SMA, prompting her to advocate for screening for other families. The articles do not indicate that any policy decision has been announced in response to her remarks.
